Hayley Okines

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Hayley Leanne Okines (3 December 1997 – 2 April 2015) was an English author and activist who was a sufferer of the extremely rare aging disease progeria. She was known for spreading awareness of the condition. Although the life expectancy for those with the condition is 13 years, Okines was part of a drug trial that had seen her surpass doctors' predictions of her projected lifespan. She died on 2 April 2015 at the age of 17, having lived four years beyond doctors' initial predictions. Okines was diagnosed with progeria at the age of two, and doctors put her projected lifespan at thirteen years. She frequently travelled to Boston in the United States to receive new treatments. In 2012, her autobiography, titled Old Before My Time, was published; it was co-authored by Okines, her mother Kerry, and contributor Alison Stokes.

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